After being on IV foscarnet for 49 days, 2 hours a day, 2 times a day, I welcome any break. It seems that this is what my life with AIDS has become. My doctor and I were talking about it last Wednesday, that is, for people like me, who have lived with HIV/AIDS for so long; We just don't have any real idea as to what this should look like. It's like, as I live, I am a walking experiment. By the way, I've been infected for 29 years and I've had AIDS for 20. I have known my HIV status for 26 years.
Yep I've taken 19 of the HIV medications in some form or the other, not to forget the host of medications I took in those early days to prevent AIDS related Opportunistic Infections, like chronic Yeast, PCP (Pneumocystis Pneumonia), Wasting Syndrome, MAC and Herpes. At one point I was on 33 pills a day. I mean I took a lot. I took 4 different types of medications just to try and prevent PCP. They were, Bacterium, Dapsone, Atovaquone, Pentamidine aerosol and eventually Pentamidine intravenously because I still got PCP 3 times. By the way, PCP is the number one infection that kills people with AIDS.
Yep I'm a walking experiment. This is one reason why we think I can't fight off herpes no matter what we try, (other than IV foscarent) damage was done that cannot be reversed and while HIV medications give me a boost now, they can't undo what's been done.
But now that treatment has advanced so much and my T-cell count is 586 and Viral Load non-detectable, I still seem to be stuck in this place I've always been, fighting to keep my head above water. Now don't get me wrong, I love my freaking life! I love living! As long as I got breath in my body, I'm gonna fight this bitch AIDS; And while I know there is sun behind the rain, the storm is a bitch to pass through. I never understood those weather people who chase storms. Who in their right mind would give up calm for chaos?
I've learned waiting it out is key. It does not matter hard dark and hopeless it may seem in that moment, there is always a tomorrow and if you just hold on long enough, the sun will break through the clouds.
So here I am again, done with IV and trying to play catch up on all the things that were so very much neglected from my blog to cleaning my house. Yes, I'm still struggling with some other health issues that have added some drama, but this I know for sure... If I weathered the last storm, and I did, I can weather them all. So I press my way each and every day, knowing that God created the rain and the sun and everything God created is good... Without a doubt, I know that each storm will pass over to make room for the sun.